In this edition:

Caregiver’s Corner: 💸5 Things I Wish I’d Known When I First Became a Financial Caregiver💸, by guest columnist Michael Lewis
📰 This Week in Dementia News 📰 
• The Connection Between Family History, the APOE4 gene, and Alzheimer’s Disease
📚 Ben’s Bookstore: recommended reading to lighten your load this week 📘
Featured this Week: 🌟 Chaotic Composure: Your Self-care Toolbox for when You're on (or over) the Edge 🌟

Caregiver’s Corner: 5 Things I Wish I’d Known When I First Became a Financial Caregiver

This week we have a special article on finance from family caregiver and top financial advisor, Michael Lewis. Here are the 5 things he wishes he had known. Enjoy!

When I first got the call to step up as a caregiver for a loved one, I was completely lost. It was a mix of love, duty, and a whole lot of “where do I even start?” As a financial advisor who now guides family caregivers, I’ve spent years figuring out what I wish someone had told me back then. That’s why I created this community—to share those hard-earned lessons so you don’t have to feel as alone as I did.

Here are the 5 things I wish I’d tackled first to build a stronger foundation and cut through the chaos:

1. The Money Picture Matters More Than You Think

I didn’t realize how fast caregiving costs—like travel, medical bills, or missed work—could pile up. I wish I’d started by mapping out my loved one’s finances (bank accounts, insurance, debts, income) and my own. A clear view would’ve helped me plan instead of panic. Pro tip: A spreadsheet works wonders—if you're not experienced using them, leverage AI tools like Numerous.ai or GPT Sheets that allow you to describe what you want to accomplish and it creates the spreadsheet and necessary formulas for you to make life easier.

2. Legal Power Isn’t Optional

I stumbled through decisions I wasn’t even sure I could legally make. I wish I’d checked for a Power of Attorney, healthcare proxy, or updated will right away—or pushed to get them set up with an estate attorney. Knowing I had authority would’ve saved me so much stress when time was tight.

3. You Can’t Do It All Alone

I thought I had to carry it all myself—huge mistake. I wish I’d built a team early: a financial advisor who gets caregiving, a tax pro, doctors, a friend or family member to lean on. Even a support group would’ve helped. Our community proves it—a solid crew keeps you grounded.

4. Your Finances Need Protection Too

I didn’t see how caregiving could drain my own wallet until it was happening. I wish I’d built an emergency fund (3-6 months of expenses), adjusted my budget, and checked work benefits like leave. And oh, how I wish I’d known about a financial caregiver agreement—a written deal laying out tasks, hours, and pay (even as family). It could’ve safeguarded my future and dodged family tension.

5. Help’s Out There—Go Find It

I had no clue about resources like Medicaid, Veterans benefits, or local nonprofits back then. I wish I’d dug into those options—or even asked about long-term care insurance—from day one. Knowing what’s available would’ve eased the load on my time, money, and nerves.

You Don’t Have to Figure It Out Solo!

Looking back, these 5 steps would’ve given me footing when I felt adrift. Now, I share them so you can start stronger than I did. To the caregiving pros out there—what do you wish you’d known at the beginning? What got you through? Let’s swap some wisdom—I’d love to hear your story.

Michael’s background on Wall Street involved generating risk-adjusted returns while reducing expenses for institutional and high-net-worth clients. This consists of managing multi-million-dollar budgets for institutional banking facilities, designing and implementing advanced technologies to improve investment performance, and managing a billion-dollar bond portfolio. Such services are typically reserved for high-net-worth individuals and families. In keeping with his mission, Michael expands his service offerings to provide the same level of attention to those with more limited resources.

Michael offers behavioral finance coaching, financial planning, and cutting-edge technology to create a financial plan customized for your family. Michael designs comprehensive financial and estate plans for benefactors that last a lifetime and through their passing by deploying creative strategies that ensure the desires of the benefactor are carried out in a tax-efficient manner while protecting eligibility for government assisted programs.

If you’d like to learn more about Michael or get in contact with him, you can find him at www.familylegacync.com. You can also join his LinkedIn Group to get access to lots of great content — that’s where I first met him, and he’s been wonderful to talk to! Finally, you can have a complimentary consultation with him by reserving a spot on his calendar. Let him know you read his article at The Dementia Newsletter!

📰 This Week in Dementia News 📰

What do you know about the APOE4 gene and Alzheimer’s Disease?

"APOE4 is the strongest risk factor gene for Alzheimer’s disease."

~National Institute of Health

👇 If Alzheimer’s disease runs in your family and you want to know more, The Phoenix Community has answers for you. Subscribe below for more info. 👇

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Ben’s Bookstore: Mapping Ambiguity

In one of this week’s news articles, we see several quotes from Pauline Boss, the author of the landmark book Ambiguous Loss. I’ve recommended the book before, and I’ll do it again now! It changed the world of caregiving when it was published, giving a name to the languishing grief of those who are caught in the difficult space of losing someone who is still physically present.

The full title of the book is Ambiguous Loss: Learning to Live with Unresolved Grief.1 If you’re a dementia caregiver who is struggling to come to terms with your grief, I believe this is essential reading.

🌟 Featured this Week: Chaotic Composure🌟

Scientific Self-Care

We all say self-care is important, but do we do it? It doesn't have to be expensive or exotic. You don't need group hugs, tearful breakthroughs, and enlightenment experiences. But you do need a few proven techniques. That's what's in this bundle. Click the link to find your Chaotic Composure.

You are seen and heard, caregiver, and you matter too.

About the Author

Hi! I’m Ben, and I’m the author of this newsletter as well as a new book on Amazon: Creating Purposeful Engagement.

I’ve been a dementia professional for over 20 years, but the fight against this disease has become much more personal for me as I am engaged in my mother’s journey with Alzheimer’s disease. I started The Dementia Newsletter as well as it’s parent company, elumenEd, to help caregivers — specifically home and family caregivers — gain access to the very best training and information available at an affordable price.

At The Dementia Newsletter, we’re dementia professionals but we’re not medical doctors or lawyers. The information provided is for general informational purposes only and should not be considered as medical or legal advice. Always consult with a qualified healthcare professional for medical diagnosis, treatment, or any health-related concerns and consult with a lawyer regarding any legal matters.

1 I’m suggesting books through the Amazon Associates program. This did NOT affect the choice of any particular book. These are my top picks for The Dementia Newsletter this week! If you pick up a copy of a book through this program, buying it through the link above helps to support the newsletter, and you still pay the same price. Happy reading!

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